ABOUT THE LIFESPAN DATA INTEGRATION OPTIONAL MODULE

The Lifespan Data Integration Module maintains the maternal infant data hub (MIDH) through continuously integrating maternal, neonatal, and pediatric records to create a regional perinatal research data repository. Our goal is to provide a core resource for maternal and child health providers, policy-makers, epidemiologists, community agencies and any stakeholder in maternal and child health.

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Efforts to improve maternal and child population health outcomes require access to reliable and timely data while appropriately addressing challenges related to regulatory barriers, privacy issues, data ownership, and technical limitations. 

The CCTST aims to address these challenges through the Lifespan Data Integration Module: 

Module goals include: 

1. Supporting seamless integration of maternal, neonatal, and pediatric records to establish a population-based, regional perinatal research data repository, or data hub, which would also enable linkage to ancillary data sets using individual level identifiers or geocoded address information.

2. Investigating longitudinal lifespan exposures before, during, and after pregnancy that impact disease susceptibility and health trajectories. 

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Core Components of the Lifespan Data Integration Module:

Maternal and child electronic health care records from the University of Cincinnati Medical Center (UCMC) and Cincinnati Children’s Hospital Medical Center (CCHMC) are integrated and linked to regional physician billing records, U.S. census data, home visiting program data (Every Child Succeeds) and state vital records (Figure 1).

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Population:

• Years represented in datahub: 2013-Current
  (updated quarterly)

• The hub includes the following:

  • >150,000 newborns (regional billing records)

  • >30,000 maternal and child UCMC electronic
    medical records

  • >5,500 mother-child dyads

Community Partnerships:

• Cradle Cincinnati

• Strong Start Avondale

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Publications

Arter S, Lambert J, Brokman A, Fall N. Diagnoses during the first three years of life for children with prenatal opioid exposure and neonatal abstinence syndrome using a large maternal infant data hub. J Pediatr Nurs. 2021 Mar 17;61:34-39. doi: 10.1016/j.pedn.2021.03.011. Epub ahead of print. PMID: 33743318.

Hall ES, Greenberg JM, Muglia LJ, Divekar P, Zahner J, Gholap J, Leonard M, Marsolo K. Implementation of a Regional Perinatal Data Repository from Clinical and Billing Records. Matern Child Health J. 2018 Apr;22(4):485-493. doi: 10.1007/s10995-017-2414-9. PMID: 29275460; PMCID: PMC5857228.

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Hall ES, Goyal NK, Ammerman RT, Miller MM, Jones DE, Short JA, Van Ginkel JB. Development of a linked perinatal data resource from state administrative and community-based program data. Matern Child Health J. 2014 Jan;18(1):316-325. doi: 10.1007/s10995-013-1236-7. PMID: 23420307; PMCID: PMC3936676.